MEDIA COVERAGE

  • Brown M, Taking health discoveries from cutting edge to clinic. University of Alberta Latest News, December 19, 2014. http://uofa.ualberta.ca/news-and-events/newsarticles/2014/december/taking-health-discoveries-from-cutting-edge-to-clinic
  • Caution urged as doctors push ahead with DNA-tailored treatments. ABC News, Sunday July 13, 2014. http://www.abc.net.au/news/2014-07-12/caution-urged-over-dna-tailored-treatments/5592252 [Website, ABC Television News and ABC Radio].
  • Interview with Elie Dolgin, Staff writer Nature – about the Structural Genomic Consortium contract with the CHDI Foundation for drug discovery research for Huntington’s Disease that expands the pre-competitive research environment (IP free) to the Proof of Clinical Mechanism. Cited in E. Dolgin. Patent-free pact pushes the boundaries of precompetitive research. Nature Medicine 20: 564-565 (2014).
  • Interview with Heidi Ledford, Staff writer Nature – About impact of gene patenting decisions on regenerative medicine following Washington Workshop, March 2014 (20 March 2014).
  • Andrea, Congressional Briefing on DNA Patents (A.K.A The Post About my Right to Interpret my Genome Sequence into Poetry). Brave Bosoms – Life from a Previvor’s Perspective (March 20, 2014): http://www.bravebosom.com/congressional-briefing-on-dna-patents-a-k-a-the-post-about-my-right-to-interpret-genome-sequence-into-poetry/.
  • 23andMe’s Legal Woes Continue. Genevalues – A blog about the ethics and economics of personalised medicine. Guest blog for Stuart Hogarth (December 3, 2013). (222 visits in first day online) Online: http://genevalues.wordpress.com/2013/12/03/23andmes-legal-woes-continue/.
  • Article on Open Access Publishing
  • Cell Press (2012) PodCast on Synthetic Biology: www.cell.com
  • Hayden EC (2011) License rules hinder work on rare disease: Animal model off-limits to Rett-syndrome researchers Nature 470, 318-319.
  • The Cross-Border Biotech Blog: Biotechnology, Health and Business in Canada, the United States and Worldwide, Technology Transfer at Canadian Universities October 28, 2010, online: http://crossborderbiotech.ca/2010/10/28/technology-transfer-at-canadian-universities/#more-5022. Reporting on Bubela and Caulfield 2010 paper in Trends in Biotechnology.
  • Munster C. Feds should have learned lessons on H1N1 rollout from listeriosis crisis. Hill Times November 16, 2009.
  • Silversides A. Stem Cell Hype Risks “Backlash”.  CMAJ October 8, 2009.  DOI:10.1503/cmaj.109-3074 <http://www.cmaj.ca/earlyreleases/8oct09_stem_cell.dtl>.
  • Lang M. Canada losing ground in stem cell research” Calgary Herald November 25, 2005 on Bubela’s presentation on politics and stem cell research at the Stem Cell Network AGM held in Calgary.

Coverage of Alberta Ocular Gene Therapy -AIHS CRIO Team Grant

October 17, 2013

  • St. Albert Leader.com, U of A researchers tackling genetic eye disorder, reprint of article by Cathrine Griwkowsky, photo by Perry Mah. http://www.stalbertleader.com/2013/10/17/u-of-a-researchers-tackle-eye-disease/

October 16, 2013

  • Eye Disease Foundation.com, Researchers offer hope for patients with rare eye disorder, includes caption from article by Keith Gerein, and photo and embedded video by Greg Southam, Edmonton Journal. http://eyediseasefoundation.com/rare-eye-diseases/researchers-offer-hope-for-patients-with-rare-eye-disorder

October 11, 2013

  • City TV, Edmonton, Breakfast Television, live interview with Mark Huyser-Wierenga by host Ryan Jespersen aired at 8:05 am. http://www.btedmonton.ca/videos/2736314703001/: Publicity Value: $759.50
  • Global TV, Regina, rebroadcast of report by Su-Ling Goh aired at 8:09 am: Publicity Value: $1,016.67
  • Global TV, Regina, rebroadcast of report by Su-Ling Goh aired at 8:32 am.: Publicity Value: $108.33

October 10, 2013

  • City TV, Edmonton, Breakfast Television, News, report aired at 6:05 am and 8:05 am.: Publicity Value: $1506.75
  • Edmonton City and Press.com, University of Alberta Team Awarded $5M for Experimental Eye Treatment, reprint of portion of article by Keith Gerien, Edmonton Journal. Includes link to article at Edmonton Journal.com. http://edmonton.cityandpress.com/node/6908800
  • Edmonton Journal, New hope for sufferers of rare vision disorder – U of A team gets $5M grant for experimental eye treatment, article by Keith Gerein, photo by Greg Southam, page A3.
  • EdmontonJournal.com, University of Alberta team awarded $5M for experimental eye treatment, article by Keith Gerein, photo by Greg Southam. Includes video supplied by AIHS. http://www.edmontonjournal.com/health/University+Alberta+team+awarded+experimental+treatment+with+video/9018193/story.html
  • Edmonton Sun, U of A researchers tackling genetic eye disorder, article by Cathrine Griwkowsky, photo by Perry Mah, page 7.
  • Ramsay C. Experimental trial at U of A could restore vision loss. Global News (October 10, 2013).
  • Global TV, Calgary, report by Su-Ling Goh aired at 6:25 pm.: Publicity Value: $775.00
  • Global TV, Edmonton, report by Su-Ling Goh aired at 6:25 pm.: Publicity Value: $1,083.36
  • Global News.ca, Experimental trial at U of A could restore vision loss, article by Caley Ramsay, includes embedded video of newscast “Health Matters” segment with Su-Ling Goh. http://globalnews.ca/news/896316/experimental-trial-at-u-of-a-could-restore-vision-loss/
  • Montreal Gazette.com, Dr. Ian MacDonald checks Mark Huyser-Wierenga’s eye on Oct. 9, 2013, reprint of photo and caption by Greg Southam, Edmonton Journal. http://www.montrealgazette.com/MacDonald+checks+Mark+Huyser+Wierenga+2013+Huyser+Wierenga+Crown+prosecutor+choroideremia+slowly+losing+vision/9018194/story.html
  • Multibriefs.com, Ophthalmologists Executive Briefing, includes headline and link to article in Edmonton Journal. http://www.multibriefs.com/briefs/Mv-opthameb/101013.html

October 9, 2013

  • Griwkowsky C. University of Alberta looks forward to $5M grant for eye research. Edmonton Sun (October 9, 2013) http://www.edmontonsun.com/2013/10/09/university-of-alberta-looks-forward-to-5m-grant-for-eye-research.
  • I4U News.com, University of Alberta looks forward to $5M grant for eye research, reprint of headline and link to article by Catherine Griwkowsky, Edmonton Sun. http://www.i4u.com/2013/10/ian-macdonald/research-forward-alberta-looks-university-grant-eye-5m
  • TV Balla.com, University of Alberta looks forward to $5M grant for eye research, reprint of headline and link to article by Catherine Griwkowsky, Edmonton Sun. http://www.tvballa.com/2013/10/ian-macdonald/alberta-eye-university-grant-5m-research-looks-forward.
  • Calgary Herald, Seeing the Impact of Collaborative Research, paid ad by AIHS B7.
  • Edmonton Journal, Seeing the Impact of Collaborative Research, paid ad by AIHS A11.
  • Globe and Mail, Seeing the Impact of Collaborative Research, paid ad by AIHS A9.
  • National Post, Seeing the Impact of Collaborative Research, paid ad by AIHS FP3.
  • CTV Edmonton,News at 6, report aired a 6:16 pm. Publicity value: $1,136.67.
  • AIHS.ca. New gene therapy trial set to help people with genetic eye diseases, AIHS news release. http://www.aihealthsolutions.ca/news/2013-10-09.php.
  • Mouallem O.  A Vision for the Future: A new chapter in Choroideremia research. Health Solutions (Fall 2013)

Coverage of Paceomics  – Genome Canada Grant

  • Alary B. Making personalized medicine a health-care winner. University of Alberta Express News (March 26, 2013) online: http://news.ualberta.ca/newsarticles/2013/march/making-personalized-medicine-a-health-care-winner.
  • Radio Interview: AM – 630 CHED Edmonton, Alberta (March 27, 2013). Alberta about personalized medicine and Genome Canada funding announcement.
  • Radio Interview: News Talk 770 (CHQR) Calgary, Alberta (March 27, 2013). Alberta about personalized medicine and Genome Canada funding announcement.

Coverage of Stem Cell Research:

  • Sornberger J. Keep calm and carry on searching for cures (02 December 2013). Canadian Stem Cell Foundation Blog. [Coverage of Li et al. Regen Med, 2013] Online: http://stemcellfoundation.ca/en/blog/categories/listings/newsdesk
  • Aldhous P. Stem cell crusaders. New Scientist (10 August 2013) 42-45. [Provided significant background content, but not quoted]
  • Bersenev A. Public Expectations and reality of stem cell therapies in translation. Cell Trials – Current Trends in Cell Therapy (December 7, 2012) online: http://celltrials.info/2012/12/07/public-expectations-reality-stem-cell-therapies-translation/. [Coverage of BMC Medicine paper]
  • Silversides A. Stem Cell Hype Risks “Backlash”.  CMAJ (October 8, 2009)  DOI:10.1503/cmaj.109-3074. Online: http://www.cmaj.ca/earlyreleases/8oct09_stem_cell.dtl.
  • Lang M. Canada losing ground in stem cell research” Calgary Herald (November 25, 2005). [Coverage of Bubela’s presentation on politics and stem cell research at the Stem Cell Network AGM held in Calgary]

Coverage of Bubela et al. Nature Biotechnology (2009):

  • Lane B. “Closed minds stifle science” The Australian July 8, 2009 [http://www.theaustralian.news.com.au/story/0,25197,25747761-30417,00.html].
  • Salleh A. “Scientists risk becoming ‘PR hacks’” ABC Science July 3, 2009 [http://www.abc.net.au/science/articles/2009/07/03/2613817.htm].
  • Lauder A. “New media and science communication standards needed: experts. Express NewsJune 19, 2009 [http://www.expressnews.ualberta.ca/article.cfm?id=10274].
  • Timed with the World Federation of Science Journalists meeting in London, Nature magazine put together a selection of recent articles focusing on journalism and science communication. The selection included the Nature Biotechnology article [http://www.nature.com/news/specials/sciencejournalism/index.html].
  • MIT Knight Science Journalism Tracker posted a PDF version of the Nature Biotechnology article. Previously, the article has only been available to readers with an institutional subscription.
  • Knight Science Journalism Tracker, “Nature Biotechnology: A lot of people who are not science journalists explain the problems facing those who are” June 11, 2009. Also see responses. [http://ksjtracker.mit.edu/?p=9540].
  • Nisbet MC. “At Nature Biotech, Science Communication Re-Considered” Framing Science Blog. June 10, 2009. [http://scienceblogs.com/framing-science/2009/06/at_nature_biotech_science_comm.php].

Coverage of Bubela et al. BMC Medicine (2008):

  • “Misleading Media Coverage Of Medicine” Medical New Today 28 Nov 2008 [http://www.medicalnewstoday.com/articles/131099.php]
  • “Misleading Media Coverage Of Medicine” Science Daily 26 Nov 2008 [http://www.sciencedaily.com/releases/2008/11/081126075613.htm]
  • “Media Often Err in Reporting Health News: Study” MedIndia, General Health News 30 Nov 2008 [http://www.medindia.net/news/Media-Often-Err-in-Reporting-Health-News-Study-44618-1.htm].
  • “Misleading Media Coverage Of Medicine” BreastCancer.Net News 27 Nov 2008.
  • “Do Herbs Get a Bad Press?” NeuroskepticBlogspot, Friday Nov 28, 2008: http://neuroskeptic.blogspot.com/2008/11/do-herbs-get-bad-press.html.

Sept-Dec 2008: Press Coverage of Report by The International Expert Group on Biotechnology, Innovation and Intellectual Property and associated case studies:

  • Waltz E “FDA launches priority vouchers for neglected-disease drugs” Nature Biotechnology 26: 1315-1316, December 2008.
  • Mara K “Ministers, Stakeholders Meet In Mali To Strategise On Health Research Systems” IP Watch —20 Nov  2008.**
  • Saez C “Parole d’experts : la propriétéintellectuellesur les biotechnologies a besoin d’un nouveau depart” IP Watch — 1 Dec 2008.**
  • Una partnership per i brevetti, Il Sole — 1 December 2008
  • Laws to protect native knowledge ‘are failing’, SciDev Net — 28 November 2008
  • Tests du cancer du sein : contestation des brevets, dernier round, AFP — 19 November 2008.
  • Wemgehört das traditionelleWissen?,Telepolis — 17 November 2008.
  • IP laws not helping indigenous people protect traditional knowledge, Mongabay.com — 17 November 2008.**
  • Beardsley TM “Editorial: Preventing Patent Purgatory” Bioscience 58:907 2008.
  • Singh S “Report faults US patent system on biotechnology, calls for change” The Wall Street Journal’s LiveMint.com (India) — 15 Oct 2008.
  • Young D “Broader IP Flexibility Urged for Drugmakers” BioWorld 15 Oct 2008.
  • Butkus B “Experts Brief US Lawmakers on ‘Broken’ IP System Believed to Curb Biotech Innovation” BioTech Transfer Week — 15 Oct 2008.
  • Morgan J “Patent system ‘stifling science’” BBC News, — 24 Sept 2008.
  • Cookson C “Patent wars hurting life sciences” Financial Times, FT.com World, — 23 Sept 2008.
  • Alphonso C “Patent system seen stifling medical breakthroughs” The Globe and Mail, — 20 Sept 2008, A4.
  • New W “New IP Model Proposed To Facilitate Technology Access in Developing Countries” IP Watch — 19 Sept 2008.
  • “Patent system ‘stifling science’” Tehran Time (Iran’s Leading International Daily) — 25 Sept 2008.
  • Mamou Y “Un grouped’expertsrecommande de repenser les règles du droit de brevets” Le Monde, — 10 Sept 2008
  • Vongdouangchanh B “Time to fix, modernize innovation gap, say biotechnology industry stakeholders” The Hill Times — 22 Sept 2008.
  • Agence France Presse, New York “ECO-Un grouped’expertsappelle à une “nouvelle ère do propriétéintellectuelle”” — 9 Sept 2008.
  • Agence France Presse – Portuguese “Especialistaspedemaabertura de uma ‘nova era do direitoautoral’” — 9 Sept 2008.
  • Agence France Presse – Spanish “Un grupo de expertos llama a una “nueva era de la propiedadintelectual”” — 9 Sept 2008.
  • Asian News International “Research reveals biotech patent system breakdown” — 10 Sept 2008.
  • Cooper D “IP law creating ‘bare medicine chest’” ABC News online — 10 Sept 2008.
  • Girardi G “Sistema de patente tem falhas” O Estado de s. Paulo (Brazil) — 11 Sept 2008, A23.
  • Cherry B “Intellectual property ‘needs revamp’ for developing nations” Science and Development Network News. — 17 Sept 2008.
  • Mbogo S “Resaerch says copyright system has collapsed” Business Daily — 11 Sept 2008 (Kenya).
  • Martino M “Study: Biotech patent system broken” Fierce Biotech, the Biotech Indutry’s Daily Monitor, — 10 Sept 2008.
  • Cherry B “Intellectual property can work for developing nations” Sunday Monitor, Monitor Online Business & Technology, — 21 Sept 2008.
  • Gold R “‘Old IP’ System Stifles Biotech Innovation, Hinders Third-World Rx Access, Report Says” BiotechTransfer Week — 10 Sept 2008.
  • Yang T “CAMPUS: McGill prof urges patent reform” The McGill Tribune — 30 Sept 2008.
  • Keenan T “Something’s rotten in the state of patents” Business EdgeVol 4, No. 20. — 3 Oct 2008.
  • SawahelW “New IP Model Proposed To Facilitate Technology Access in Developing Countries” Intellectual Property Watch Biotechnology — 19 Sept 2008.
  • Intellectual property ‘needs revamp’ for developing nations, SciDev Net — 16 September 2008
  • Research says copyright system has collapsed, Business Daily Africa — 11 September 2008
  • ‘Old IP’ System Stifles Biotech Innovation, Hinders Third-World Rx Access, Report Says, Biotech Transfer Week — 10 September 2008
  • Study: Biotech patent system broken, FierceBiotech – The Biotech Industry’s Daily Monitor — 10 September 2008
  • Patent system seen stifling medical breakthroughs: A more collaborative approach is needed to bring research to market, McGill professor says in report, Globe and Mail — 10 September 2008
  • IP laws creating ‘bare medicine chest’, ABC Science — 10 September 2008
  • Research reveals biotech patent system breakdown, North Korea Times — 10 September 2008
  • Ungrouped’expertsrecommande de repenser les règles du droit des brevets, Le Monde — 9 September 2008
  • Ungrouped’expertsappelle à une “nouvelle ère de propriétéintellectuelle”, Agence France Presse — 9 September 2008